Our commitment to HIV research is deep: we have been involved since the very beginning of the HIV epidemic, taking part in the Medical Research Council’s Concorde and Delta trials. Now based at the University of Birmingham NHS Foundation Trust’s purpose-built research centre, MIDRU, we are intensively and continually engaged in the gathering and provision of data to national surveillance programmes, national and local audits, and research studies alike.
Our staff are actively encouraged to engage in research of their own, and internationally significant research is undertaken within our service on a year-round basis. All of our data gathering is governed by ethics approval and the input of patients themselves. If you’re new to the idea of clinical trials, we recommend NAM’s resources.
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More About Our Research
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Public Health England gathers national and local dater in order to track new diagnoses, monitor HIV care and target prevention activities. We contribute fully to these efforts, in addition to responding to all clinical audits in order to develop our understanding of our services and improve our care in all possible ways. Likewise, the commissioning and provision of those services is driven by a knowledge of the health landscape – and our data-gathering is again here essential to driving quality of care and empowering efforts to diagnose, treat and prevent HIV.
All of our data-gathering respects confidentiality as its first priority. All our data is held securely, with only trained and designated staff being assigned access. We comply with all relevant laws, guidelines and standards: transfer of data to other parties is also subject to these stringent checks. We label data with limited patient identifiers, but these are not the names or addresses of the individuals, and are designed as opaque signifiers of individuals in order to allow proper estimation of HIV trends and outcomes.
This ethical approach and focus on patients extends into our extensive research activity, which is focused on expanding and deepending our understand of HIV in order to improve care and outcomes for those living with HIV. The huge strides made by HIV care in the years since the virus was first identified have always been powered by research and innovation, and we are proud to be part of that tradition.
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